ROAR Consortium Funded!

We are excited to be part of the Rare Organic Acidemias Research (ROAR) Consorium as part of the RDCRN. Baylor College and Texas Children’s Hospital will lead the clinical projects including a prospective longitudinal observational study of patient phenotypes and outcomes, a clinical trial of treatment for cobalamin C, and a randomized trial comparing virtual outpatient visits with in-person outpatient care.

We (Children’s Hospital Colorado) are excited to be one of the 5 clinical sites and hope to extend our work on Glutaric Aciduria Type 1 within the ROAR consoritum.